El pasado mes de abril murió un hombre de 37 años llamado Francisco Guzmán. A medida que envejezco, más me sorprende la vida, más me maravilla su imprevisibilidad, su carácter paradójico, la magia inconcebible que a veces derrocha. Francisco Guzmán tenía una licenciatura en Física y otra en Humanidades y trabajaba como becario investigador en el Instituto de Filosofía del CSIC. Además era diverso funcional: nació con parálisis cerebral y para moverse necesitaba una silla de ruedas. Brillante teórico, fue un importante activista en el Movimiento de Vida Independiente de España, a través del foro Vida independiente y divertad (divertad es la unión entre diversidad y libertad). Entre otras cosas, fue promotor de un proyecto de asistencia personal llamado Programa de Vida Independiente; la Comunidad de Madrid dispone de este programa desde 2006 y atiende a 58 personas con diversidad funcional física, mayores de edad y con una vida activa de estudio o trabajo. En vez de recluirlos para siempre en residencias que, por muy bien atendidas que estén, terminan siendo cárceles, el programa ofrece asistencia personal los 365 días al año para poder moverse, salir, entrar, trabajar, pasear y, en suma, vivir una vida digna de ser llamada así. Es una idea sencilla y magnífica y sale más barata que las residencias. Al principio, Francisco contó con 10 horas al día de asistencia personal, que luego fueron reducidas a siete horas por la crisis. Un tiempo de libertad que él sabía emplear muy bien.
Sus palabras están entre las más sabias, más tiernas, más valientes. Curan de la tristeza del vivir”
No le conocí personalmente y lo lamento. He sabido de él a través de otro diverso funcional, el escritor y amigo José Antonio Fortuny. Él me envió el documento que Francisco había dejado a modo de mensaje final, un texto titulado Panegírico que me estalló en la cabeza. Sus palabras están entre las más hermosas que jamás he leído. Entre las más sabias. Más tiernas. Más valientes. Inmensas palabras sanadoras que deberían ser oídas por todo el mundo, porque curan de la tristeza del vivir. Hay personas que, teniéndolo todo en apariencia, no son capaces de sobrellevar el peso de la existencia y se suicidan o se hunden en la droga. Francisco, en cambio, parecía carecer hasta de lo más básico, como si el azar se hubiera ensañado con él. Y, sin embargo, su amor a la vida nos emborracha. Pero prefiero callar, porque su voz es mucho más poderosa que la mía. Por razones de espacio, aquí sólo reproduzco parte de su texto. Si googleas Panegírico minusval 2000 podrás leerlo todo. Y dice así:
“He visto y he hecho cosas que jamás imaginaríais, lo supe por vuestro asombro cada vez que os las contaba.
He visto las nubes pasar como algodones bajo mis pies sobre el valle del río Deva en Cantabria.
He bajado sin frenos en la silla, a tumba abierta, como los ciclistas, un viejo puerto en la sierra de Madrid, con la única convicción de que yo y quien empujaba y derrapaba en las curvas éramos capaces de hacerlo. Teníamos 12 años. (…)
He amado mucho, hasta querer morirme, fijaos qué disparate… y no tengo noticia de haber sido correspondido, tan solo indicios, destellos confusos y algún que otro chasco. Finalmente, el acontecimiento no tuvo lugar… queda pendiente para la próxima vida.
Sin embargo, he practicado relaciones sexuales plenas, más de lo que la mayoría probablemente habría imaginado, y mucho, mucho menos de lo que me hubiera gustado en la vida. No lo comentaba casi nunca para evitar desaprobaciones inútiles e innecesarias. Pero en esta lista de cosas por las que mi vida ha merecido la pena el sexo no podía faltar.
Me he asomado a los misterios del cosmos. Aprendí que el universo es muy grande, y las posibilidades, infinitas, así que no desesperéis. (…) Por si alguno de los presentes aún no se ha enterado: esto es la despedida de un diverso funcional. Tuve la gran fortuna de vivir como lo hice precisamente porque me permitieron aceptarme y vivir tal cual era. (…) Podéis felicitar a mis padres si os place, sin duda se lo merecen, sin embargo, no olvidéis que no deberían haber sido los únicos soportes durante la mayor parte de mi vida. Las administraciones públicas deben garantizar la no discriminación, la igualdad y la libertad de todos. (…) Me voy con el buen gusto de haber experimentado la auténtica independencia.
Lamento al fin dejaros, ahora que empezaba a dejar de tener miedo. Que me desembarazaba de cautelas y obligaciones. Que me permitía, a veces, presentarme ante quien fuera tal cual soy, sin ostentosas demostraciones de paciencia o resistencia, y sin preocuparme demasiado por el futuro. Di pocos pasos por ese camino, me habría gustado saber adónde me habría conducido, seguramente a un lugar bonito y tranquilo de mi conciencia, un lugar que todos deberíamos tener y compartir.
Desde vuestro recuerdo, os quiero”.
Fuente: elpais.com
Hmm it looks like your blog ate my first comment (it was extremely long) so I guess I’ll just sum it up what I had written and say, I’m thoroughly enjoying your blog. I too am an aspiring blog blogger but I’m still new to the whole thing. Do you have any helpful hints for first-time blog writers? I’d certainly appreciate it.|Woah! I’m really enjoying the template/theme of this blog. It’s simple, yet effective. A lot of times it’s tough to get that «perfect balance» between superb usability and visual appeal. I must say that you’ve done a amazing job with this. Additionally, the blog loads extremely quick for me on Safari. Outstanding Blog!|Do you mind if I quote a few of your articles as long as I provide credit and sources back to your site? My blog is in the exact same niche as yours and my visitors would really benefit from some of the information you provide here. Please let me know if this alright with you. Thanks a lot!|Hey there would you mind letting me know which webhost you’re working with? I’ve loaded your blog in 3 different browsers and I must say this blog loads a lot quicker then most. Can you suggest a good internet hosting provider at a reasonable price? Cheers, I appreciate it!|Fantastic blog you have here but I was wondering if you knew of any discussion boards that cover the same topics discussed here? I’d really like to be a part of online community where I can get responses from other knowledgeable individuals that share the same interest. If you have any recommendations, please let me know. Many thanks!|Hello there! This is my first comment here so I just wanted to give a quick shout out and say I really enjoy reading your blog posts. Can you suggest any other blogs/websites/forums that go over the same topics? Thank you!|Do you have a spam issue on this blog; I also am a blogger, and I was curious about your situation; we have created some nice methods and we are looking to swap strategies with others, why not shoot me an e-mail if interested.
Hmm it appears like your site ate my first comment (it was super long) so I guess I’ll just sum it up what I wrote and say, I’m thoroughly enjoying your blog. I as well am an aspiring blog blogger but I’m still new to everything. Do you have any suggestions for beginner blog writers? I’d certainly appreciate it.|Woah! I’m really enjoying the template/theme of this blog. It’s simple, yet effective. A lot of times it’s challenging to get that «perfect balance» between usability and appearance. I must say that you’ve done a awesome job with this. Additionally, the blog loads very quick for me on Safari. Excellent Blog!|Do you mind if I quote a couple of your posts as long as I provide credit and sources back to your site? My blog is in the exact same area of interest as yours and my users would genuinely benefit from some of the information you provide here. Please let me know if this okay with you. Thank you!|Hello would you mind letting me know which web host you’re utilizing? I’ve loaded your blog in 3 different internet browsers and I must say this blog loads a lot faster then most. Can you suggest a good hosting provider at a honest price? Cheers, I appreciate it!|Superb blog you have here but I was wanting to know if you knew of any community forums that cover the same topics talked about in this article? I’d really like to be a part of community where I can get feed-back from other experienced people that share the same interest. If you have any suggestions, please let me know. Kudos!|Howdy! This is my 1st comment here so I just wanted to give a quick shout out and tell you I really enjoy reading through your articles. Can you suggest any other blogs/websites/forums that go over the same subjects? Thanks a ton!|Do you have a spam issue on this site; I also am a blogger, and I was curious about your situation; many of us have created some nice methods and we are looking to exchange strategies with other folks, be sure to shoot me an email if interested.
When I originally commented I clicked the «Notify me when new comments are added» checkbox and now each time a comment is added I get four e-mails with the same comment. Is there any way you can remove people from that service? Cheers!
Please let me know if you’re looking for a author for your blog. You have some really good articles and I believe I would be a good asset. If you ever want to take some of the load off, I’d really like to write some articles for your blog in exchange for a link back to mine. Please send me an email if interested. Many thanks!|Have you ever thought about adding a little bit more than just your articles? I mean, what you say is fundamental and all. Nevertheless think about if you added some great pictures or video clips to give your posts more, «pop»! Your content is excellent but with images and clips, this blog could certainly be one of the most beneficial in its niche. Terrific blog!|Interesting blog! Is your theme custom made or did you download it from somewhere? A design like yours with a few simple adjustements would really make my blog shine. Please let me know where you got your theme. Cheers|Hello would you mind stating which blog platform you’re working with? I’m going to start my own blog soon but I’m having a hard time choosing between BlogEngine/Wordpress/B2evolution and Drupal. The reason I ask is because your design seems different then most blogs and I’m looking for something completely unique. P.S Apologies for getting off-topic but I had to ask!|Hi there just wanted to give you a quick heads up. The text in your content seem to be running off the screen in Chrome. I’m not sure if this is a format issue or something to do with web browser compatibility but I figured I’d post to let you know. The design and style look great though! Hope you get the issue fixed soon. Many thanks|With havin so much content do you ever run into any problems of plagorism or copyright violation? My blog has a lot of exclusive content I’ve either authored myself or outsourced but it seems a lot of it is popping it up all over the web without my authorization. Do you know any methods to help reduce content from being ripped off? I’d definitely appreciate it.|Have you ever considered creating an e-book or guest authoring on other sites? I have a blog based on the same ideas you discuss and would love to have you share some stories/information. I know my audience would value your work. If you are even remotely interested, feel free to shoot me an e mail.|Hello! Someone in my Myspace group shared this site with us so I came to look it over. I’m definitely enjoying the information. I’m book-marking and will be tweeting this to my followers! Great blog and outstanding style and design.|Fantastic blog! Do you have any recommendations for aspiring writers? I’m planning to start my own site soon but I’m a little lost on everything. Would you recommend starting with a free platform like WordPress or go for a paid option? There are so many options out there that I’m totally overwhelmed .. Any suggestions? Appreciate it!|My developer is trying to convince me to move to .net from PHP. I have always disliked the idea because of the costs. But he’s tryiong none the less. I’ve been using WordPress on a number of websites for about a year and am worried about switching to another platform. I have heard very good things about blogengine.net. Is there a way I can import all my wordpress posts into it? Any help would be really appreciated!|Does your website have a contact page? I’m having a tough time locating it but, I’d like to send you an e-mail. I’ve got some suggestions for your blog you might be interested in hearing. Either way, great site and I look forward to seeing it expand over time.|It’s a pity you don’t have a donate button! I’d most certainly donate to this brilliant blog! I suppose for now i’ll settle for book-marking and adding your RSS feed to my Google account. I look forward to new updates and will share this website with my Facebook group. Chat soon!|Greetings from Los angeles! I’m bored at work so I decided to browse your blog on my iphone during lunch break. I love the knowledge you provide here and can’t wait to take a look when I get home. I’m surprised at how fast your blog loaded on my phone .. I’m not even using WIFI, just 3G .. Anyways, great blog!|Hello there! I know this is kinda off topic however , I’d figured I’d ask. Would you be interested in trading links or maybe guest authoring a blog post or vice-versa? My website addresses a lot of the same topics as yours and I feel we could greatly benefit from each other. If you are interested feel free to shoot me an email. I look forward to hearing from you! Great blog by the way!