Asperger, el síndrome invisible

Se nace Asperger. Y no se puede evitar. Es una alteración en el neurodesarrollo de origen no conocido que afecta, básicamente, a la comunicación y a la relación con los otros porque les es difícil interpretar la realidad tal y como lo hace el resto. «Usted entra en esta habitación y en seguida sabe que está en una consulta porque es capaz de poner en relación todos sus elementos. A un Asperger le cuesta hacerlo porque ve las cosas una a una de forma aislada: una mesa, un ordenador, una bata blanca, una camilla, y no los puede relacionar para extraer un significado global», explica Inmaculada Palazón, psicóloga clínica del servicio de Pediatría del Hospital General. Tampoco pueden interpretar el lenguaje gestual. «Algo físico, como un reloj, siempre es lo que es, pero una sonrisa no. Puede mostrar ironía, complicidad, cortesía, burla, y todo ese mundo sutil, interpretativo, les cuesta descifrarlo porque no tienen, como nosotros, el código que les permita hacerlo. No procesan igual la información. No saben interpretar los gestos».

Se caracterizan también por no tener empatía, y esa incapacidad para ponerse en la piel del otro, prever su reacción o anticipar su intención les hace muy inocentes y vulnerables. Junto a ello, son extraordinariamente honrados y sinceros. Dicen siempre lo que piensan porque no se plantean que la verdad pueda molestar u ofender, y esa sinceridad causa problemas a nivel social porque la gente los ve como niños maleducados.

A todo ello se añade, según Palazón, sus problemas con las complejidades y las sutilezas del lenguaje verbal, ya que sólo entienden los significados literales de las frases. Si una madre le dice a su hijo: «No puedes salir solo», él le replicará una y otra vez que sí puede, y tendría razón, porque impedimentos físicos no hay, lo que pasa es que la madre no le deja.

Al contrario de lo que les ocurre con el lenguaje verbal y no verbal, se manejan muy bien con las imágenes y tienen muy buena memoria visual. Por eso, en la etapa infantil, les son muy útiles las agendas compuestas por secuencias de pictogramas con las tareas a realizar en cada momento del día. «Les da mucha tranquilidad organizarse así porque los conceptos temporales abstractos los llevan fatal. Los dibujos les ayudan a saber qué tienen que hacer y a no sentirse perdidos».

Según Inmaculada Palazón, «el Asperger siempre se da en personas con una capacidad intelectual media- alta, y cuando algo les interesa, se dedican a ello con tal intensidad que son muy buenos en lo que hacen». Según los últimos estudios, el grado de prevalencia ha aumentado en los últimos años. Una de cada cien personas presenta este trastorno, una cifra «muy elevada», según la psicóloga.

Un diagnóstico precoz y un programa de atención psicoeducativo específico, son las claves para enseñarles a vivir en un mundo que no pueden interpretar como lo hace la mayoría. Acaban aprendiendo a usar nuestros códigos, aunque sigan siendo extraños para ellos, y su evolución, mayoritariamente, es buena.

La discapacidad invisible

Inmaculada Palazón llama al Asperger «el transtorno oscuro» porque para diagnosticarlo no existen marcadores biológicos que permitan identificarlo mediante pruebas médicas, y la evaluación ha de hacerse valorando las manifestaciones observadas: «Uno de los problemas es la ausencia de diagnóstico. Hay muchos Asperger que no saben que lo son hasta la edad adulta y muchos otros están sin diagnosticar porque los profesionales de los ámbitos médico y educativo tienen un gran desconocimiento sobre el tema. Se quedan con que son raros, consentidos o malcriados».

En este sentido, la etapa escolar es muy importante para, por un lado, detectar posibles casos y, por otro, para saber lo que son y poder ayudarles a evolucionar. «Los colegios son nuestro principal caballo de batalla, junto a la necesidad de que se les conozca y el Asperger deje de ser la discapacidad invisible» asegura Ezkarne Carazo, presidenta de la Asociación Asperger Alicante (ASPALI).

«Todos tienen problemas en el cole. Los profesores no suelen saber nada sobre el tema. Estamos cansados de oír cosas como ‘a tu hijo no le pasa nada’, que están malcriados o son maleducados. En Educación infantil podría ser comprensible, porque podrían confundirse los síntomas con timidez o inmadurez, pero en Primaria cuando un niño tiene Asperger es evidente. Si es que se sabe lo que es, claro», cuenta la presidenta.

Gema Morant, psicóloga de la asociación, añade que, a pesar de la importancia de una detección precoz, «hay pocos profesionales que se atrevan a diagnosticarlo en edades tempranas por el miedo a ponerles etiquetas cuando son muy pequeños. Debería hacerse, pero no se hace».

Acoso escolar

Una de las iniciativas de ASPALI consiste precisamente en acudir a los colegios que lo solicitan para explicar qué es el Asperger y cómo tratar a los niños que lo padecen. «Luchamos por sensibilizar a la comunidad escolar, no sólo a los profesores, sino también a los niños porque la inmensa mayoría de los Asperger padece acoso escolar. No les entienden, los ven raros, y no les respetan».

Junto a la concienciación, la asociación aboga por introducir en los centros adaptaciones metodológicas «que no tienen por qué ser curriculares, ya que pueden asumir los contenidos como los demás, sólo que son más lentos».

Algunas medidas sencillas pero que les ayudaría mucho sería darles más tiempo para hacer los exámenes, o procurar que las preguntas sean claras. «Fallan no porque no sepan la respuesta, sino porque no saben qué se les está preguntando», señala Ezkarne Carazo.

No obstante, la realidad es que no existe un protocolo de actuación en el actual sistema educativo y el grado de intervención depende de la sensibilidad de cada profesor y cada centro escolar.

ASPALI cuenta con 155 asociados en la provincia de Alicante y desarrolla, entre otras iniciativas, una Escuela de Padres, y terapias individuales o grupales con las que intentan suplir las carencias del sistema público. «Nacimos para dar respuesta a una necesidad. Hay familias que vienen muy desesperadas, pero cuando se dan cuenta de que no son los únicos y que les entendemos, todo cambia mucho», añade.


Fuente: lasprovincias.es, en Espaciologopedigo.com

(Visited 15 times, 16 visits today)

Etiquetas

177 comments

  1. Renan Barao defeated Eddie Wineland by [url=http://www.adgnext.com/rmenu_supplychain_spends.html] Authentic 49ers Jerseys Sale[/url] TKO in the second round to retain the interim UFC Bantamweight Championship at .
    WOW defends his belt with the most impressive win of his career yet – spinning back-kick KO win in the 2nd!
    UFC (@ufc)
    The fighters went through a mostly uneventful first round, trading strikes that went nowhere. Wineland actually had the upper hand for most of the round, although it could have been scored either way on the scorecards.
    But just seconds into the second round, Barao made sure the fight wouldn’t make it to the judges. Standing in a cocked pose, he went for a spinning back kick to the chest, only for Wineland to duck into the blow and get struck in the face. Barao then pounced on his staggered opponent, finishing him off with quick blows as the referee called off the fight.
    Barao took advantage of the spotlight that comes with being on the undercard of a Jon Jones title fight to showcase his dominance in the bantamweight division. He has been unstoppable since arriving to the [url=http://beanbagdesign.com/Stalls_Designs.html] Authentic Arizona Cardinals Jerseys Sale[/url] UFC and is on a run that’s lasted much longer than that.
    The 26-year-old Brazilian dropped his first career fight to Joao Paulo Rodrigues de Souza but hasn’t lost since, for a span of 32 bouts. The only blemish during that tremendous ongoing stretch was a no-contest against Claudemir Souza.
    Barao has established himself as one of the sport’s most promising stars in the process. He proved that once again by defending his interim title.
    It marked his fourth straight notable win after he previously knocked off Scott Jorgensen, Urijah Faber and Michael McDonald. Any questions about his ability to stay at the top should be eliminated after that impressive run of results.
    The latest came over a veteran challenger in Wineland, who earned a title shot [url=http://www.adgnext.com/rmenu_supplychain_spends.html]49ers Jerseys For Cheap[/url] after two straight solid showings against Jorgensen and Brad Pickett.
    Before those wins, the American had lost two straight fights and found himself at a key turning point in his career. With so much competitiveness within the [url=http://bscindia.com/Servicess.html] nfl jersey wholesale[/url] division, any [url=http://bscindia.com/Servicess.html]authentic nfl jerseys[/url] type of extended losing streak can cause a fighter to slide down the ladder quickly.
    Luckily for Wineland, he showed off his power in a second-round knockout of [url=http://beanbagdesign.com/Stalls_Designs.html]Arizona Cardinals Jerseys For Cheap[/url] Jorgensen to move himself in the right direction. The result was a shot at the interim title, but he just couldn’t capitalize on the opportunity.
    He deserved the shot, but Barao is just on another level right now, as his long winning streak and pair of title defenses show.
    The interim champion has conquered every fighter thrown his way since joining the UFC. As it stands now, it doesn’t appear he will be seriously challenged until Dominick Cruz is back to full strength. The champion has missed nearly two years due to an .
    While Cruz continues to work toward his return, Barao clearly remains in firm control of the bantamweight division.
     

  2. This is my first fan post so please be kind lol. This post is my prediction of wins/losses with scores and a small description on why I feel that way.
    Week 1 – at . Winner Chargers. Score: 27-21.
    Two good defenses go head to head. I was going to give it to the Texans but it looks like Foster will not be back week one. It looks like the majority of the Chargers starters will be there for week one. A stout pass rush with Freeney and Liuget allows mistakes to happen for the Texans offense. JJ Watt records 2 sacks bit cant continuously bring pressure with the double team of Fluker and Phillips.
    Week 2. Chargers at . Winner Eagles. Score 35-24.
    The Chargers do well on offense thanks to but Rivers [url=http://adsin.net/side/Arizona-Cardinals-Jerseys.html]Custom Arizona Cardinals Jerseys For Sale[/url] struggles a bit. The Eagles running attack of Vick and Mckoy are too much for the Chargers to handle.
    Week 3. Chargers at . Winner Chargers. Score 30-17.
    The Chargers struggle a bit to contain Chris Johnson but excel in pass defense. Rivers has his way with the Titans defense. Mathews also has a good game.
    Week 4. at Chargers. Winner Cowboys. Score 27-21.
    Chargers play a well fought game but struggle to stop Romo a bit and the Chargers struggle against the Cowboys run and pass defense. The Bolts make the Cowboys run game irrelevant.
    Week 5. Chargers at . Winner Chargers. Score 35-17. The Raiders fail to stop Rivers or Mathews in this game, but Rivers has a better game though the Raiders bring the pass rush. Rivers has adjusted well to the new system and the corners have trouble covering Gates and deadly passes to Woodhead.
    Week 6. at Chargers. Winner Chargers. Score 31-21.
    comes in and does decent but everything else goes the Chargers way. Mathews has a huge game and Rivers struggles a bit but only turns the ball over once. No answer for Chargers defense.
    Week 7. Chargers at . Winner Chargers. Score 24-17.
    Jones-Drew rushes for over 100 yards but the Chargers [url=http://adsin.net/side/Arizona-Cardinals-Jerseys.html]Arizona Cardinals Jerseys[/url] pass defense makes the Jags offense look silly. Mathews does ok but Rivers wins the game.
    Week 9. Chargers at . Winner Redskins. Score 35-24.
    RG3 tears up San Diego on the ground and does relatively well th4ough the air. Their pass rush gets to Rivers and they contain Mathews. Rovers exploits the secondary some to get some points on the board.
    Week 10. at Chargers. Winner Broncos. Score 35-21.
    Chargers do well coming out of the gate. Mathews does well on the ground but Rivers struggles with pass rush even though he gets some nice points on the board and doesn’t turn the ball over more than once. Th3 Chargers defense plays ok against Denver, especially on the ground but with the Chargers weak depth and injuries to have taken toll by now, Denver wins.
    Week 11. Chargers at . Winner Chargers. Score 31-17.
    Dolphins have an improved team but with a struggling Qb the Chargers contain the run game, and mount sacks and interceptions against the Dolphins. The Bolts defense wins this game, Rivers does ok Mathews does ok.
    Week 12. Chargers at . Winner Chiefs. Score 35-27.
    Chargers struggle to contain the Chiefs offense. The Chargers offense plays decent but not as well as the Chiefs. Offensive game to where the Chiefs pull it put in their loud stadium but the Chargers fight and play consistently to keep it close.
    Week 13. Chargers at . Winner Bengals. Score 27-21.
    The Bengals consistency throughout the game is too much for the Chargers to handle. The Bengals play consistently good throughout the game while the Chargers struggle to find balance but have a few good plays based on adjustments.
    Week 14. at Chargers. Winner Chargers. Score 24-21.
    This was a tough one but I give ot to the Chargers at home. Chargers d contains the run game and Manning does good bit not great. Rivers plays good but not great as well. Mathews does really well in the run game and allows the defense to rejuvenate stamina enough for the Bolts to walk away with a win.
    Week 15. Chargers at Broncos. Winner Chargers. Score 35-24.
    Chargers play with Heart. Chargers are at a 7-6 record while the Broncos are at 11-2. Mike McCoy and Ken Whisenhunt win this with strong play calling and fire. Mathews runs hard and Rivers plays very well. Chargers bring a good pass rush but struggle a bit on protection and run d, still enough for a win.
    Week 16. Raiders at Chargers. Winners Chargers. Score 35-14.
    Chargers know they have an opportunity to get a wild card and the Raiders have nothing to fight for. A fired up Chargers team at home demolishes the Raiders.
    Week 17. Chiefs at Chargers. Winner Chargers. Score 24-21.
    This was my hardest game to predict. Both teams sit at 9-7. One makes it to the playoffs while the other doesn’t. Rivers has a superb game and Mathews fails. Charles has a good, not great game and Alex Smith does ok. Pagano has done enough with his defense [url=http://www.3dots.co.in/mcc_panel.html]Nike NFL Jerseys[/url] to force mistakes from KC. Chargers win barely.
    So 10-6 Chargers is my prediction. This is of the Bolts stay a little healthier then usual but I predict that based on new team doctors and coaches who should put their players in a better position to stay healthy. An injured [url=http://www.3dots.co.in/mcc_panel.html]New NFL Jerseys[/url] Charger team cam go from that 10–6 team I predicted into a 6-10 team fast but I think MM is good enough to work around injuries enough to get us 8 wins with injuries even.

  3. UPDATE: Rockstar Games has sent out copywrite complaints after the [url=http://www.adsbangalore.com/aboutus/Arizona-Cardinals-Jerseys.html]Arizona Cardinals Jerseys[/url] map above was published on , the source of this [url=http://a1corp.in/jerseys/NFL_Jerseys_for_men.html]NFL women Jerseys[/url] article. But GTA is sharing more details after many gamers complained about the perceived size of the gameworld. Here’s a breakdown released by Rockstar on yesterday. Rockstar also expanded the map with more information to give players a .
    GTA III [url=http://www.adsbangalore.com/aboutus/Arizona-Cardinals-Jerseys.html]Custom Arizona Cardinals Jerseys For Sale[/url] = 3 sq. mi.
    GTA: Vice City = 3.5 sq. mi.
    GTA: San Andreas = 13.6 sq. mi.
    GTA IV [url=http://www.a2zbahrain.com/softwaress.html]Wholesale Jerseys[/url] = 6.8 sq. mi.
    Red Dead Redemption = 12 sq. mi.
    GTA V = 49 sq. [url=http://www.a2zbahrain.com/softwaress.html]Wholesale NFL Jerseys[/url] mi.
    ‘s game map has leaked! Check out your future empire below originally posted by Coinpixels. With plenty of room for vehicular, naval and aircraft manslaughter outside of Los Santos there will lots of opportunities to get out in the country.
    The first image also shows many properties for sale; purple badges denote available purchases. Also shown are cinemas, which we all know are just great places for drive-by-shootings.
    Grand Theft Auto V comes out on the 17, just a week away. Begin your training regime by memorizing this map.
    RELATED:
    RELATED:
    REALTED: [url=http://a1corp.in/jerseys/NFL_Jerseys_for_men.html]NFL Jerseys for men[/url]
    [Via ]Stay Connected with Complex Video Games

  4. On Wednesday, [url=http://baalperazimint.com/ship_servicess.html]Discount Arizona Cardinals Jerseys[/url] | Starbucks will run an open letter from CEO Howard Schultz that asks customers not to bring guns with them on their morning coffee runs. In the wake of a number of shootings and the more specifically coffee-oriented , the company has [url=http://allseasonherbs.com/Discount-Arizona-Cardinals-Jerseys.html]Arizona Cardinals Jerseys Discount[/url] | in major papers, including the [url=http://allseasonherbs.com/Discount-Arizona-Cardinals-Jerseys.html]Discount Arizona Cardinals Jerseys[/url] The New York Times, The Wall Street Journal, The Washington Post and USA Today.
    After briefly addressing Starbucks’s inadvertent role in the gun debate, :
    Our company s longstanding approach to open carry has been to follow local laws: we permit it in states where allowed and we prohibit it in states where these laws don t exist. We have chosen this approach because we believe our store partners should not be put in the [url=http://www.acmaholidays.com/USA-Wholesale_NFL_Jerseys.html]Arizona Cardinals Jerseys Discount[/url] | uncomfortable position of requiring customers to disarm or leave our stores. We believe that gun policy should be addressed by government and law enforcement not by Starbucks and our store partners.
    Recently, however, we ve seen the open carry debate become increasingly uncivil and, in some [url=http://baalperazimint.com/ship_servicess.html]Cheap NFL Jerseys[/url] | cases, even threatening. Pro-gun activists have used our stores as a political stage for media events misleadingly called Starbucks Appreciation Days that disingenuously portray Starbucks as a champion of open carry. To be clear: we do not want these events in our stores. [url=http://www.acmaholidays.com/USA-Wholesale_NFL_Jerseys.html]Arizona Cardinals Jerseys Discount[/url] | Some anti-gun activists have also played a role in ratcheting up the rhetoric and friction, including soliciting and confronting our customers and partners.
    For these reasons, today we are respectfully requesting that customers no longer bring firearms into our stores or outdoor seating areas even in states where open carry is permitted unless they are authorized law enforcement personnel.
    Schultz followed up this request by emphasizing that it was just that: a request, not an outright ban on open carry in Starbucks, in part because «enforcing a ban would potentially require our partners to confront armed customers.»

Comentarios cerrados.