Al hablar de Esclerosis Múltiple muy difícilmente podríamos afirmar que hay acciones especificas que beneficien o coadyuven a mejorar las condiciones de vida en general de los pacientes con esta enfermedad, debemos recordar que en cada persona existen manifestaciones únicas y por ello la atención debe tornarse a un ámbito personalizado que permita conocer la problemática, tratamiento, rehabilitación y en resumen la combinación de acciones que puedan inferir directamente en mejorar sus condiciones.
Haciendo referencia directamente a las Políticas Públicas que deben ser generadas para dar atención a quienes viven con Esclerosis Múltiple, es necesario realizar esta reflexión partiendo de dos diferentes escenarios, el primero de ellos exclusivamente desde el tema de la salud pública, en donde necesariamente debe ser garantizado para los pacientes con este padecimiento un diagnostico certero y puntual que permita disminuir los riesgos y recibir la atención necesaria en una etapa inicial, para ello es necesario capacitar desde las diferentes instancias gubernamentales no solo a los médicos especialistas, sino además al personal de primer contacto y ofertar así opciones de tratamiento que se adecuen a sus necesidades específicas.
En los últimos años se han acrecentado de manera importante el número de personas que padecen Esclerosis Múltiple, en el año 2000, fecha en que se fundó la Asociación Zacatecana de Esclerosis Múltiple, había tan solo 20 pacientes registrados. A la fecha se tienen alrededor de 150; lo más lamentable es que esta enfermedad, de ser exclusiva en edades de entre 20 a 40 años; ahora se presenta en menores de edad.
Aquí la importancia de implementar políticas públicas que den atención, desde el ámbito de salud a quienes presentan esta enfermedad, que como ya se dijo antes, deben enfocarse a la detección a tiempo y tratamientos para garantizar una mejora calidad de vida.
Desde el ámbito de la inclusión social, y al ser esta una enfermedad que da origen a diversas discapacidades múltiples, es fundamental apoyar el empleo, la asociación y la incorporación al deporte, la cultura y la recreación, con el fin de garantizar una vida activa y plena, buscando de manera primordial un trato justo, equitativo y digno para este sector de la población.
Si bien, hay pacientes que pueden vivir muchos años sin efectos discapacitantes porque tienen acceso servicios médicos que absorben los tratamientos, -que cabe mencionar son de alrededor de 37 mil 500 pesos mensuales- hay quienes no gozan de este beneficio público, por lo tanto le es muy difícil acceder a los medicamentos y ello ocasiona que la enfermedad avance y genere discapacidades motrices o sensoriales, y con ello rezague su desarrollo personal, profesional y familiar.
En este ámbito pues, y desde la subsecretaría para la Inclusión de las Personas con Discapacidad, estamos siempre en la búsqueda de esos espacios inclusivos, que nos den a quienes ya vivimos con alguna discapacidad, la oportunidad de crecer y desarrollarnos en equidad de condiciones.
Mención especial merece la dignificación y el respeto a los derechos de las personas con Esclerosis Múltiple, como lo merece cualquier otra persona, con alguna otra enfermedad, lo anterior como un compromiso conjunto entre sociedad y gobierno que permita a este grupo prioritario acceder en igualdad de circunstancias a las opciones que desde en su comunidad se ofertan.
El Octavo Congreso Nacional de Esclerosis Múltiple que se avecina, es una oportunidad más que tendremos para no solo conocer avances médicos en la detección y tratamiento de esta enfermedad; es también el espacio oportuno para buscar que en las instituciones de salud del estado, estas políticas públicas de las que hablaba al principio se generen e implementen, como también lo haremos desde el ámbito social, en el ámbito de la inclusión y respeto a los derechos humanos.
* Subsecretario para la Inclusión de las Personas con Discapacidad
Fuente: lasnoticiasya.com
Awesome blog! Is your theme custom made or did you download it from somewhere? A theme like yours with a few simple adjustements would really make my blog jump out. Please let me know where you got your design. Bless you
I am really loving the theme/design of your blog. Do you ever run into any browser compatibility problems? A number of my blog readers have complained about my site not working correctly in Explorer but looks great in Safari. Do you have any solutions to help fix this issue?|I’m curious to find out what blog system you’re utilizing? I’m experiencing some small security issues with my latest site and I’d like to find something more safe. Do you have any recommendations?
312988 318876bmmzyfixtirh cheapest phentermine zero health expert prescribed qrdzoumve buy phentermine diet pill iixqnjouukkebr 214549
At this time it sounds like BlogEngine is the best blogging platform out there right now. (from what I’ve read) Is that what you are using on your blog?|Terrific post however I was wanting to know if you could write a litte more on this topic? I’d be very grateful if you could elaborate a little bit more. Many thanks!|Hello! I know this is somewhat off topic but I was wondering if you knew where I could get a captcha plugin for my comment form? I’m using the same blog platform as yours and I’m having difficulty finding one? Thanks a lot!|When I initially commented I clicked the «Notify me when new comments are added» checkbox and now each time a comment is added I get four emails with the same comment. Is there any way you can remove people from that service? Appreciate it!|Howdy! This is my first visit to your blog! We are a collection of volunteers and starting a new project in a community in the same niche. Your blog provided us useful information to work on. You have done a marvellous job!|Hello there! I know this is somewhat off topic but I was wondering which blog platform are you using for this site? I’m getting sick and tired of WordPress because I’ve had issues with hackers and I’m looking at options for another platform. I would be great if you could point me in the direction of a good platform.|Hello! This post could not be written any better! Reading this post reminds me of my good old room mate! He always kept talking about this. I will forward this post to him. Pretty sure he will have a good read. Thank you for sharing!|Write more, thats all I have to say. Literally, it seems as though you relied on the video to make your point. You definitely know what youre talking about, why waste your intelligence on just posting videos to your site when you could be giving us something enlightening to read?|Today, I went to the beach front with my children. I found a sea shell and gave it to my 4 year old daughter and said «You can hear the ocean if you put this to your ear.» She put the shell to her ear and screamed. There was a hermit crab inside and it pinched her ear. She never wants to go back! LoL I know this is totally off topic but I had to tell someone!|Yesterday, while I was at work, my cousin stole my apple ipad and tested to see if it can survive a 40 foot drop, just so she can be a youtube sensation. My apple ipad is now destroyed and she has 83 views. I know this is completely off topic but I had to share it with someone!|I was wondering if you ever considered changing the layout of your website? Its very well written; I love what youve got to say. But maybe you could a little more in the way of content so people could connect with it better. Youve got an awful lot of text for only having one or two pictures. Maybe you could space it out better?|Hi there, i read your blog occasionally and i own a similar one and i was just curious if you get a lot of spam remarks? If so how do you reduce it, any plugin or anything you can advise? I get so much lately it’s driving me crazy so any assistance is very much appreciated.|This design is steller! You certainly know how to keep a reader amused. Between your wit and your videos, I was almost moved to start my own blog (well, almost…HaHa!) Fantastic job. I really enjoyed what you had to say, and more than that, how you presented it. Too cool!|I’m truly enjoying the design and layout of your website. It’s a very easy on the eyes which makes it much more pleasant for me to come here and visit more often. Did you hire out a developer to create your theme? Fantastic work!|Hi! I could have sworn I’ve been to this site before but after checking through some of the post I realized it’s new to me. Anyhow, I’m definitely glad I found it and I’ll be book-marking and checking back often!|Hello! Would you mind if I share your blog with my myspace group? There’s a lot of people that I think would really enjoy your content. Please let me know. Cheers|Hey, I think your site might be having browser compatibility issues. When I look at your blog in Safari, it looks fine but when opening in Internet Explorer, it has some overlapping. I just wanted to give you a quick heads up! Other then that, awesome blog!|Wonderful blog! I found it while surfing around on Yahoo News. Do you have any tips on how to get listed in Yahoo News? I’ve been trying for a while but I never seem to get there! Thank you|Hi! This is kind of off topic but I need some guidance from an established blog. Is it hard to set up your own blog? I’m not very techincal but I can figure things out pretty fast. I’m thinking about creating my own but I’m not sure where to begin. Do you have any points or suggestions? Many thanks|Hello there! Quick question that’s completely off topic. Do you know how to make your site mobile friendly? My weblog looks weird when viewing from my apple iphone. I’m trying to find a template or plugin that might be able to correct this problem. If you have any recommendations, please share. Thanks!|I’m not that much of a online reader to be honest but your blogs really nice, keep it up! I’ll go ahead and bookmark your website to come back later on. Many thanks|I really like your blog.. very nice colors & theme. Did you design this website yourself or did you hire someone to do it for you? Plz answer back as I’m looking to construct my own blog and would like to know where u got this from. many thanks|Amazing! This blog looks exactly like my old one! It’s on a totally different topic but it has pretty much the same layout and design. Wonderful choice of colors!|Hey just wanted to give you a quick heads up and let you know a few of the pictures aren’t loading properly. I’m not sure why but I think its a linking issue. I’ve tried it in two different internet browsers and both show the same results.|Hey are using WordPress for your site platform? I’m new to the blog world but I’m trying to get started and create my own. Do you require any html coding knowledge to make your own blog? Any help would be greatly appreciated!|Hey this is kinda of off topic but I was wondering if blogs use WYSIWYG editors or if you have to manually code with HTML. I’m starting a blog soon but have no coding knowledge so I wanted to get guidance from someone with experience. Any help would be greatly appreciated!|Hello! I just wanted to ask if you ever have any trouble with hackers? My last blog (wordpress) was hacked and I ended up losing many months of hard work due to no back up. Do you have any solutions to stop hackers?|Hey there! Do you use Twitter? I’d like to follow you if that would be okay. I’m absolutely enjoying your blog and look forward to new posts.|Howdy! Do you know if they make any plugins to safeguard against hackers? I’m kinda paranoid about losing everything I’ve worked hard on. Any tips?|Hello there! Do you know if they make any plugins to help with Search Engine Optimization? I’m trying to get my blog to rank for some targeted keywords but I’m not seeing very good success. If you know of any please share. Thank you!|I know this if off topic but I’m looking into starting my own weblog and was curious what all is required to get set up? I’m assuming having a blog like yours would cost a pretty penny? I’m not very internet smart so I’m not 100% sure. Any tips or advice would be greatly appreciated. Thank you|Hmm is anyone else having problems with the images on this blog loading? I’m trying to determine if its a problem on my end or if it’s the blog. Any responses would be greatly appreciated.|I’m not sure exactly why but this blog is loading incredibly slow for me. Is anyone else having this problem or is it a issue on my end? I’ll check back later and see if the problem still exists.|Howdy! I’m at work surfing around your blog from my new apple iphone! Just wanted to say I love reading through your blog and look forward to all your posts! Carry on the great work!|Wow that was strange. I just wrote an incredibly long comment but after I clicked submit my comment didn’t show up. Grrrr… well I’m not writing all that over again. Regardless, just wanted to say excellent blog!|Hi exceptional blog! Does running a blog such as this take a large amount of work? I’ve very little expertise in computer programming but I was hoping to start my own blog in the near future. Anyhow, should you have any recommendations or tips for new blog owners please share. I understand this is off topic but I just needed to ask. Appreciate it!|Hey there! I understand this is kind of off-topic however I had to ask. Does running a well-established website like yours require a large amount of work? I’m brand new to blogging but I do write in my journal every day. I’d like to start a blog so I can easily share my experience and feelings online. Please let me know if you have any kind of recommendations or tips for brand new aspiring blog owners. Appreciate it!|Hey I know this is off topic but I was wondering if you knew of any widgets I could add to my blog that automatically tweet my newest twitter updates. I’ve been looking for a plug-in like this for quite some time and was hoping maybe you would have some experience with something like this. Please let me know if you run into anything. I truly enjoy reading your blog and I look forward to your new updates.|I don’t know whether it’s just me or if perhaps everybody else experiencing problems with your blog. It appears like some of the written text within your posts are running off the screen. Can someone else please comment and let me know if this is happening to them as well? This could be a problem with my browser because I’ve had this happen before. Many thanks|First off I would like to say terrific blog! I had a quick question that I’d like to ask if you do not mind. I was interested to know how you center yourself and clear your head prior to writing. I’ve had a difficult time clearing my thoughts in getting my ideas out there. I do enjoy writing but it just seems like the first 10 to 15 minutes are generally wasted just trying to figure out how to begin. Any suggestions or tips? Cheers!